dzieci z opoznieniem psycho ruchowym

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  • #109395

    joasia1755

    Moj synek urodzil sie z opadajaca
    powieka prawdopodobnie przez
    rozyczke ktora prawdopodobnie byla w
    ciazy a wykryte zostaly przeciwciala
    rozyczki i maly mial problem z
    przybieraniem na wadze wiec
    wprowadzony zostal faltomat do mleka
    przy nim maly przybieral pol kg w mies
    pozniej mu odstawilam fantomalt i
    maly zaczal przybierac bez
    wspomagacza po pol roku maly znow
    malo przybieral nawet z
    fantomaltem .maly zaczal glowke
    trzymac dopiero jak mial rehabilitacje
    metoda boba rehabilitowany byl przez
    1.5roku rechabilitacje nic prawie nie
    przyniosly rezultatu przeszlismy na
    rechbilitacje metoda vojty 3razy
    dziennie od maja ale rowniez jak na
    razie to pomoglo ze miesnie brzucha
    zaczely pracowac .diagnostyka
    szpitalna miala byc w tym mies ale
    maly zlapal katar i nie moglismy zostac
    przyjeci na oddzial kolejny termin
    mamy za mies . Maly bedzie mial
    robiony rezonans magnetyczny i wiele
    innych badan w tej chwili jego stan
    zdrowia jest pod znakiem zapytania
    lekarze nie wiedza co dziecku jest
    dopiero badania wykarza. W tej chwili
    maly ma skonczone 19mies jak sie go
    posadzi to bedzie siedzial,nie siada
    sam,nie pelza ,nie raczkuje ,nie chodzi.
    Nie sylabuje powie
    daj,mama,tata,gaworzy okrzyki
    radosci i zlosci .i szukam mam ktore
    maja tak samo chore dziecko zeby
    zaciagnac porady ,wspierac sie
    wzajemnie

    #4760131

    szajajaba

    Joasiu, napisałam PW.



    #4760132

    joasia1755

    znalezlismy odpowiedz na nasze pytania

    witam po 19mies szukania przyczyny u syna bardzo powolnego rozwoju w koncu znalezlismy lekarza ktory byl wstanie odpowiedziec nam na nasze pytania wiadomo nie sa to dobre wiadomosci ale juz wiadomo w jakim kierunku leczyc syna a syn choruje na mozgowe porazenie dzieciece teraz tylko najwazniejsze sa cwiczenia ale trzeba walczyc bo kazdy rodzic chce dobrze dla swojego dziecka.

    #4760133

    smoki

    Joasiu, wiem jak jest Ci trudno.

    Mój syn Dawid ma 9 lat i dziecięce porażenie mózgowe. Mimo choroby jest dzieckiem 100% samodzielnym i jednym z najlepszych uczniów w swojej klasie.

    Masz przed sobą kilka lat ciężkiej pracy, ale uwierz mi że może być bardzo dobrze.

    Korzystaj z każdego dnia, bo teraz mózg Twojego dziecka jest bardzo „plastyczny” i możecie wiele nadrobić. Teraz też macie czas na zajęcia rehabilitacyjne, a im dziecko jest starsze tym ważniejszy będzie jego kontakt z rówieśnikami niż z panią rehabilitantką.

    #4760134

    liliowanowalijka

    Dobrze, że Was synuś został zdiagnozowany, wiecie co robić i jak pomóc synkowi. Mocno trzymam za Was kciuki i życzę wielu sił.

    #4760135

    joasia1755

    opoznienie psycho ruchowym

    Dzis mielismy wizyte u pani rehabilitanki pani. Maciejewska w poznaniu z tego co widze to ma duze doswiadczenie w masazach i rehabilitacji mowi prosto z mostu w sumie to powiedziala ze dziecko bylo caly czas zle rehabilitowane mam nadzieje ze teraz bedzie dobrze ale rehabilitacja musi byc 4 razy dziennie i jak najwiecej a odstep nie duzy niz 3godz mam nadzieje ze sie uda tylko musze przyznac ze lepiej mi sie zylo jak nie wiedzialam diagnozy teraz jest ciezlo i ciagle chce mi sie plakac ale dla Michalka wszystko zrobie nawet jakbym miala cale swoje zycie poswiecic .Bardzo wszystkim dziekuje za wspieranie i dodawanie otuchy oraz za to ze odpisvjecie .Zycze wszystkim dzieciom zdrowka buziaki



    #4760136

    smoki

    To normalne, że czujesz rozpacz i chce ci się płakać.

    Chyba wszystkie mamy chorych dzieci mają taki etap.

    Ja pamiętam, że najpierw wierzyłam w błędną diagnozę i że nagle wszystko będzie dobrze. Potem wpadłam w rozpacz i wręcz heroicznie chciałam wszytko (z sobą n czele) poświęcać. Potem przyszłą faza zazdrości. Zazdrości zdrowym dzieciom i ich mamom. Przez te wszystkie fazy musiałam przejść, żeby mi się w głowie pookładały priorytety i żebym mogła sensownie pomagać własnemu dziecku, wychowując go na niezależnego człowieka a nie „moje biedne chore maleństwo”. Wtedy też zaczęłam znajdować radość i „normalność” w tym co robię. W takim swoim zwykłym, choć niezwykłym macierzyństwie.

    Od kilku lat prowadzę warsztaty dla rodziców 🙂

    #4760137

    joasia1755

    Tak samo czuje jak pani opisala mysle ze trafilismy na dobra p.rehabilant bo jak cwiczylismy wczoraj takie cwiczenia trwaja godz a na caly dzien to 4godz a wczoraj razem z p rehabilitantka to wyszlo z 3 godz i po tych wszystkich juz cwiczeniach polozylam malego na brzuch i maly zawsze lezal a tym razem musialam wszystko oblozyc poduszkami do okola bo maly co jakis czas pelzal sobie (poczatki )

    #4760138

    smoki

    Joasiu, trzymam kciuki za Was.
    Pisz. I o sukcesach i o chwilach załamania. I pamiętaj, że masz jedno z najzdolniejszych dzieci świata, bo to czego on się nauczył jest jak zdobycie Mount Everestu dla innych ludzi:Kciuki:

    #4760139

    dorotka1

    słyszłam o tej rehabilitant same dobre opinie
    że ostra i wymagajaca i sie nie patyczkuje ale ma wyniki
    powodzenia



    #4760140

    joasia1755

    Bede sie starac opisywac wszystko,tak jak w pamietniku.A rzeczywiscie tez slyszalam duzo rzeczy na temat p.Maciejewskiej ale nie zrazilo mnie co do wizyty i nie byla taka straszna a ja sie tak balam:) ale juz nie jedno wyprowadzila na prosta wiec warto sprobowac i postarac sie zdobyc szczyt pozdrawiam

    #4760141

    liliowanowalijka

    Mocno trzymam kciuki za Michałka, wierzę, że wspólnie sobie poradzicie, małymi kroczkami, powolutku do celu 🙂



    #4760142

    meakhainiazex

    games online games-onlinee.com some graj-online.pl filmy filmy-online.com.pl

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    #4760143

    joasia1755

    Witam juz prawie 3tyg minelo od kad zmienilismy rehabilitacje i w sumie widze ze Michalek po trochu stara sie pelzac sa chwile takie ze nic mu sie nie chce ale to rzadko sie to zdarza.I musze sie pochwalic ze czesto widze usmiech na twarzy mojego synka nawet wtedy gdy cwiczymy,nawet bardzo fajnie przesypia noce wczesniej byly nie przespane noce wiecej placzu niz usmiechu.Biore czesto malego na spacer na plac zabaw pokazuje mu jak mozna fajnie sie bawic,za pierwszym razem nic mu sie nie podobalo a teraz to lubi sie krecic na karuzeli mam nadzieje ze z czasem spodoba mu sie hustawka,slizgawka itd bo na chwile obecna to boi sie tego ale malymi kroczkami probujemy wszystkiego po trochu.W tamtym tygodniu Michalek mial podcinane wedzidelko bo bylo za krotkie teraz to jvz go tak to nie boli ale pierwsze 3 dni byly straszne maly prawie wcale nie jadl i nie pil ale naszczescie to juz za nami.Pozdrowienia dla wszystkich i dziekujemy za wsparcie i za to ze jestescie z nami pa buziaki

    #4760144

    smoki

    Cieszę się, że piszesz Joasiu 🙂

    Mój syn, z ciężkim porażeniem, miał nigdy samodzielnie nie usiąść, nigdy nie napisać litery, nie jeść samodzielnie, nie zapiąć guzika.

    Teraz biega, jeździ na rowerze na 2 kółkach i pisze w szkole, nie mówiąc już o zwykłych czynnościach codziennych. Ba! Nawet zaczął trenować sztuki walki 🙂

    Trochę widać, że jest chory, ale jest w pełni samodzielny.

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